Saturday, December 8, 2012

A Nice Letter from a Scleroderma Patient



I just received this nice letter from C.  I recently donated quite a few hats to Scleroderma patients.  C. is almost finished with a transplant that she is receiving as part of a clinical trial.  I am anxious to hear about the results and will post more information as soon as it's available!

Taylor,

Thank you for what you are doing. I am a Scleroderma patient from________. I just received several of your hats from my fellow Scleroderma patient and friend. It was a really bright spot in an otherwise tense and challenging time. Thank you!

I am in ________, participating in a clinical trial for auto-immune diseases where I'm getting a stem cell transplant. I'll be here for two months. It's cold! I'm losing my femininity as I lose my hair. I'm worried how my family and friends will treat me as I "get ugly" during this process. Your adorable hats let me feel like myself! It's not my blond hair, but it is a chance for my face to shine and not be overwhelmed by the odd baldness. It's wonderful!

I believe attitude is everything while undergoing stem cell transplant. I'm doing fine on that front! Now you are part of that.